Having a parent or grandparent with HD makes life more complicated at times. You have to think about things most of your friends never have to. Being at risk doesn't mean that your life is over, it just means that you have another factor to think about when making important decisions about your life. You can still go to college, have a career, go travelling, get married - do whatever you want to do in fact!

It can be difficult to decide when to share this information with important people, and particularly when you are in a serious relationship. Maybe show them this website so they can find out more about HD and what it's all about. It's often better to be open with the important people in your life as they can support you when things are rough. Keeping things secret is never easy and can make you unwell and stressed out. Even though it's difficult to talk about, you owe it to yourself to get the support you need, and you might be surprised how understanding people can be! Make sure you choose a good time to bring it up, when you've got time to talk and are feeling calm. Remember though, it's up to you who you choose to tell and when. Trust your judgement, if it feels right for you, go for it!